Meaning of words Example of the concept AiMo

Transkriptio

1 Meaning of words Example of the concept AiMo Nordic Conference, Oslo Emmi Tuomi, psychologist

2 DEAFBLIND PERSONS IN FINNISH SERVICE SYSTEM Services for developmentally disabled people, divided in 15 areas (municipalities or joint municipalities) covering the whole Finland, Eteva joint municipality being the biggest area. Especially congenitally deafblind persons are included in these services Kuurosokeat ry. - just the right services for deafblind persons, but - association, not part of the public services economical questions

3 ETEVA joint municipality 2009 Paajarvi + UEP (joint municipality of southern Finland) = Eteva Owned by 49 municipalities 2500 clients, mostly developmentally disabled people Accommodation and work services, day activities for severely disabled 3 units for evaluation and aid in crisis situations (mostly challenging behaviour) Special services: social workers, psychologists, music, occupational, physical, sexual and psychotherapists, special nurses for AAC, autism and AiMo

4 AiMo = AistiMonivammainen Aisti = sense Moni = multiple vammainen = disabled AiMo-clients/team/work beginning in Paajarvi in the middle of 90 s, cooperation with NUD nursing and evaluating severely disabled clients, having either or both seeing and hearing deficits emphasis on interaction, tactile communication, holistic rehabilitation Team for deafblind later AiMo-team (nurses/therapists specialized in AiMo-clients)

5 AiMo-clients: Inquiry in 1998 (Paajarvi area): ~7% clearly having multiple disability including seeing and hearing deficits; ~30% having seeing or hearing deficits 2009 rough estimate including southern Finland 200 names in AiMo-clients list (200/2500)

6 - AiMo-team having specialists at best, nowadays under 10 (multiprofessional), all of us having also other client groups than only AiMo-clients Few accommodation units specialized in AiMo-clients In the beginning of 2000 even plans about AiMo resource center

7 : Birth of Eteva and other organisational changes today Eteva AiMo-work is not doing so well There s lot of work to do (200/2500) There s workers interested and motivated in AiMo-work There s knowledge and Nordic support available Why then?

8 As such things are not so bad Sensory deficits glasses and SI s Physical disabilities accessibility, physiotherapy Severe/ profound disabilities good general care, daily activities and human dignity guaranteed

9 Deafblind / AiMo needs more than that, COMBINATION of these, OVERALL VIEW on rehab. including: Interactional partnership Tactile communication Developmental profile true Person Centered Planning (PCP)

10 . Deafblindness/AiMo vs. autistic problems, challenging behaviour, anxiety, aggression --- Deinstitutionalization = Homely accommodation near family, PCP(?) vs. fragmentation and alienation of expertise?

11 Toimintayksiköt ja muut palvelut 2012 Asumispalvelut Sysmä Työ- ja päivätoimintapalvelut Padasjoki Liikkuva päivätoiminta Tukikeskuspalvelut Hämeenlinna, Kerava ja Lahti Asikkala Heinola Palveluratkaisut, Arjen tuki ja Kommunikaatiopalvelut palvelevat koko Etevan aluetta Humppila Jokioinen Forssa Hattula Janakkala Hämeenlinna Hämeenkoski Kärkölä Hollola Lahti Nastola Iitti Kuntayhtymän hallinto, taloushallinto, tukipalvelut Ypäjä Tammela Hausjärvi Orimattila Loppi Riihimäki Mäntsälä Perhehoito, pitkäaikainen Karkkila Hyvinkää Pukkila Myrskylä Lapinjärvi Perhehoitoa on myös alueen ulkopuolella. Nummi-Pusula Nurmijärvi Järvenpää Pornainen Askola Loviisa Vihti Tuusula Kerava Porvoo Karjalohja Lohja Espoo Kauniainen Vantaa Sipoo Siuntio Raasepori Inkoo Kirkko- nummi Hanko

12 What should one - react to first? What should one specialize to? What issues should development be focused on?

13 UNFAIR True everyday Deafblind being the most disabled of the disabled?? It matters: Quality of life, wellbeing of parents, professional skills Words, terms, concepts, diagnosis as a solution??

14 Concept AiMo When known it s understood, used and practiced Holistic view Tactile sense and interaction appreciated Only used in Eteva Must be actively maintained: local, national, nordic education AiMo-manual

15 Meaning of words Difficult, old concepts Special, unique, beautiful concepts (tactile, haptic, interaction partner, developmental profile ) Nordic definition

16 Meaning of Diagnosis Words vs. numbers diagnosis? DSM-V (2013) Environmental factors significance100%? Explaining more or less? Securing or insecuring services?